I Have Marfan Syndrome

Blog

Blog about being a 30 something man living with Marfan Syndrome and raising two daughters that might have Marfan.

#	Article Title	Date	Hits
1	Social Security Disability Court Appearance	Thursday, 29 July 2010	33
2	The In-Laws	Monday, 12 July 2010	61
3	Disability Court Date	Tuesday, 22 June 2010	99
4	One Year Surgery Anniversary	Wednesday, 26 May 2010	121
5	Potty Talk	Wednesday, 19 May 2010	131
6	Sam and Olivia's Echos	Friday, 23 April 2010	170
7	Kids and the Lab	Thursday, 08 April 2010	222
8	Asleep At the Wheel	Sunday, 28 March 2010	186
9	Skin Color	Thursday, 25 February 2010	202
10	Drug Trials	Sunday, 21 February 2010	225
11	Losartan vs Atenolol Trials	Monday, 15 February 2010	462
12	My Relationship with Sam	Sunday, 14 February 2010	203
13	CPAP Machine	Tuesday, 09 February 2010	284
14	Primary Care Physician	Tuesday, 02 February 2010	178
15	Manly Stereotypes - Part 2	Tuesday, 19 January 2010	241
16	Sam's Checkup and Her Eyes	Tuesday, 12 January 2010	212
17	Narcolepsy?	Monday, 04 January 2010	218
18	Beds	Wednesday, 30 December 2009	185
19	Innapropriate Gifts	Saturday, 19 December 2009	217
20	When Will It Stop?	Monday, 23 November 2009	232
21	Gunman Takes Highschool in My Town	Thursday, 12 November 2009	257
22	Sick Season	Thursday, 29 October 2009	218
23	Female Image	Monday, 19 October 2009	322
24	Projecting our fears	Thursday, 01 October 2009	181
25	Health Care and Insurance	Sunday, 27 September 2009	157
26	Wife's away	Thursday, 24 September 2009	137
27	Neurology follow up	Saturday, 12 September 2009	170
28	New Seizure Medication	Sunday, 30 August 2009	254
29	Keppra and Seizures	Saturday, 22 August 2009	403
30	Complex Partial Seizures	Thursday, 13 August 2009	175
31	Panic Attacks	Friday, 31 July 2009	155
32	Physical Therapy	Saturday, 25 July 2009	182
33	Kids	Thursday, 23 July 2009	458
34	Disseminating Information	Saturday, 18 July 2009	156
35	Scar Tissue	Sunday, 12 July 2009	193
36	Second Week On My Own	Wednesday, 01 July 2009	141
37	First Week On My Own	Wednesday, 24 June 2009	165
38	Operative Report	Wednesday, 17 June 2009	180
39	Recuperating with Kids	Thursday, 11 June 2009	193
40	First Week Home	Monday, 08 June 2009	178
41	3 days at home	Thursday, 04 June 2009	390
42	Emergency Surgery	Tuesday, 02 June 2009	147
43	My heart update	Wednesday, 13 May 2009	266
44	The Heat	Monday, 27 April 2009	188
45	Feet and legs	Monday, 20 April 2009	444
46	Muscles and bones	Friday, 10 April 2009	340
47	Socks	Saturday, 04 April 2009	173
48	Bicycles	Friday, 27 March 2009	154
49	Be proud	Thursday, 19 March 2009	421
50	Strollers	Saturday, 14 March 2009	138
51	Warfarin Dosages	Thursday, 26 February 2009	210
52	My baby's getting bigger!	Thursday, 26 February 2009	131
53	Sex... yes... it can happen	Saturday, 14 February 2009	263
54	My dad	Sunday, 25 January 2009	218
55	Siblings	Sunday, 25 January 2009	191
56	Oldest Daughter worries	Thursday, 15 January 2009	185
57	First day alone	Monday, 05 January 2009	188
58	Strength Training for Kids	Saturday, 27 December 2008	179
59	Picking up my new daughter	Sunday, 07 December 2008	344
60	Thanksgiving	Wednesday, 03 December 2008	178
61	Growth Hormones and kids	Thursday, 06 November 2008	218
62	Blood Pressure	Thursday, 06 November 2008	537
63	New Baby!	Saturday, 18 October 2008	275
64	Applying for Disability	Wednesday, 08 October 2008	264
65	Manly stereotypes	Monday, 08 September 2008	539
66	Having a daughter	Thursday, 21 August 2008	395
67	My music	Saturday, 09 August 2008	679
68	Dental Work	Tuesday, 05 August 2008	349
69	My Daughter's Echo	Wednesday, 30 July 2008	657
70	Losartan - Day 26	Tuesday, 22 July 2008	818
71	My daughter and Marfan	Tuesday, 15 July 2008	400
72	Children	Thursday, 10 July 2008	442
73	Heart Disease and Depression	Wednesday, 09 July 2008	473
74	Community Awereness	Tuesday, 08 July 2008	436
75	Chiropractor	Sunday, 06 July 2008	369
76	Losartan	Friday, 04 July 2008	560